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original article |
Date |
Title |
Authors Max. 6 Authors |
| 1 |
[GO] |
2026―Jun―10 |
Patient and public involvement and engagement in Long COVID research: embedding inclusion in research |
L. Skipper, M. A. Faghy, C. Thomas, R. E. M. Ashton, T. Bewick, R. Owen |
| 2 |
[GO] |
2025―Jun―17 |
Integrating patient and public involvement during the COVID-19 pandemic: lessons from COVID-clinical neuroscience study |
Praveen Prathapan, Mark A. Ellul, Emma Collins, Stephen McKeever, Ava Easton, Benedict D. Michael |
| 3 |
[GO] |
2025―May―09 |
Co-production in HIV research: a case study from the COVID-19 pandemic |
Vasiliki Papageorgiou, Jane Bruton, Halle Johnson, Silvia Petretti, Wezi Thamm, Joshua Anderson, Husseina Hamza, Helen Ward |
| 4 |
[GO] |
2025―Apr―25 |
Co-designing and pilot-testing an infographic to support the consent process in an adaptive platform trial for adults in ICU with community-acquired pneumonia or COVID-19: a mixed methods study within a trial (SWAT) |
Heather K. O’Grady, Kathy Smith, Sandra Dalziel, Barbara Dolanjski, Gyan Sandhu, Marlene Santos, Jackie Bosch, Lyn S. Turkstra, Srinivas Murthy, John C. Marshall, Michelle E. Kho |
| 5 |
[GO] |
2024―Nov―14 |
“Unidos Hablemos” - description of a virtual conference series to engage the Hispanic and Latino community in asthma and COVID-19 education and research |
Vivian Hernandez-Trujillo, Mary Hart, Rose Marie Ramos, Lynda Mitchell, Alex Colon Moya, Dorothy Delarosa, Margie Lorenzi, Marcela Gieminiani, Donna D. Gardner |
| 6 |
[GO] |
2024―Nov―09 |
Implementation of patient and public involvement and engagement (PPIE) for the therapies for long COVID in non-hospitalised individuals (TLC) project |
Olalekan Lee Aiyegbusi, Christel McMullan, Sarah E. Hughes, Grace M. Turner, Shamil Haroon, Richard Hotham, Kirsty Brown, Yvonne Alder, Lisa Agyen, Lewis Buckland, Jennifer Camaradou, Amy Chong, Felicity Jeyes, Karen L. Matthews, Patricia Moore, Jane Ormerod, Gary Price, Michael Saint-Cricq, David Stanton, Anita Walker, Melanie J. Calvert |
| 7 |
[GO] |
2024―Sep―13 |
Patient engagement as a collaborative process in a large Dutch COVID-19 vaccination study (RECOVAC) - insight into the contribution of patient engagement and learnings for the future |
J. P. M. Vervoort, W. S. Konijn, D. E. M. C. Jansen, C. Boersma, J. de Zeeuw, M. M. Ho-dac - Pannekeet, R. T. Gansevoort, A. L. Messchendorp, J. S. F. Sanders, R. de Wildt-Liesveld |
| 8 |
[GO] |
2023―Oct―18 |
Demonstrating the learning and impact of embedding participant involvement in a pandemic research study: the experience of the SARS-CoV-2 immunity & reinfection evaluation (SIREN) study UK, 2020-2023 |
Anna Howells, Erika Neves Aquino, Deepika Bose, Martin Gerard Kelly, Barbara Molony-Oates, Asmah Hassan Syed, Kim Tolley, Claire Neill, Susan Hopkins, Victoria Hall, Jasmin Islam |
| 9 |
[GO] |
2023―Sep―07 |
Finding connection “while everything is going to crap”: experiences in Recovery Colleges during the COVID-19 pandemic |
Holly Harris, Rowen Shier, Georgia Black, Anna Di Giandomenico, Elizabeth Lin, Gail Bellissimo, Jordana Rovet, Sam Gruszecki, Sophie Soklaridis |
| 10 |
[GO] |
2023―May―22 |
The impact of patient and public involvement on COVID-19 immunology research: experiences from the UK Coronavirus Immunology Consortium |
Erika Neves Aquino, Paul Moss, Mo Hafeez, Robert Jasper, Tony Kelly, Lynn Laidlaw, Vivienne Wilkes |
| 11 |
[GO] |
2023―May―10 |
To summarise the approach to and findings of the PPIE undertaken as part of a programme of secondary research with a vulnerable, hard to reach population during the COVID-19 pandemic |
Niall McGrane, Paul Dunbar, Laura M. Keyes |
| 12 |
[GO] |
2023―Mar―30 |
Co-production of a feasibility trial of pacing interventions for Long COVID |
Grace M. Turner, Christel McMullan, Olalekan Lee Aiyegbusi, Sarah E. Hughes, Anita Walker, Felicity Jeyes, Yvonne Adler, Amy Chong, Lewis Buckland, David Stanton, Elin Haf Davies, Shamil Haroon, Melanie Calvert |
| 13 |
[GO] |
2023―Mar―23 |
Using telepresence robots as a tool to engage patient and family partners in dementia research during COVID-19 pandemic: a qualitative participatory study |
Lillian Hung, Charlie Lake, Ali Hussein, Joey Wong, Jim Mann |
| 14 |
[GO] |
2022―Sep―28 |
The realities and expectations of community involvement in COVID-19 research: a Consumer Reference Group perspective |
Claire Adams, Paul Albert, Tim Benson, Anne Cordingley, Barbara Daniels, Noreen Fynn, Mary Gurgone, Chris Jeffery, Ann White, Natalie Strobel |
| 15 |
[GO] |
2022―Sep―05 |
Development and implementation of an online community as a strategy for mixed methods research during a pandemic |
Lisa Shea, Jennifer Bushen, Nina Ahmad, Gabrielle Geonnotti, Joy LaMori, Stephanie Terrey, Pepa Gonzalez, Jill Shuman |
| 16 |
[GO] |
2022―Jul―27 |
Insights on conducting digital patient and public involvement in dementia research during the COVID-19 pandemic: supporting the development of an “E-nabling digital co-production” framework |
Mauricio Molinari-Ulate, Rebecca Woodcock, Isabelle Smith, Henriëtte G. van der Roest, Manuel A. Franco-Martín, Michael P. Craven |
| 17 |
[GO] |
2022―Apr―11 |
Challenges and adaptations to public involvement with marginalised groups during the COVID-19 pandemic: commentary with illustrative case studies in the context of patient safety research |
Isabel Adeyemi, Caroline Sanders, Bie Nio Ong, Kelly Howells, Leah Quinlivan, Louise Gorman, Sally Giles, Mat Amp, Elizabeth Monaghan, Sumaira Naseem, Adam Pearson, Sudeh Cheraghi-Sohi |
| 18 |
[GO] |
2022―Mar―29 |
A reappraisal of public engagement in Oxford during the pandemic: three case studies |
Milly Farrell, Clare Wilkinson |
| 19 |
[GO] |
2021―Oct―11 |
What has the COVID-19 pandemic taught us about conducting patient and public involvement remotely? Insights from a series of digital meeting observations |
Elin Lampa, Björn Sonnentheil, Antónia Tökés, Georgina Warner |
| 20 |
[GO] |
2021―Jun―01 |
The value of the patient and public contribution to cancer research UK’s review of covid-19 impact on its clinical research portfolio |
Anne Croudass, Richard Stephens |
| 21 |
[GO] |
2021―Mar―08 |
Patient and public involvement prior to trial initiation: lessons learnt for rapid partnership in the COVID-19 era |
Zahra Jamal, Alexander Perkins, Christopher Allen, Richard Evans, Joanna Sturgess, Claire Snowdon, Tim Clayton, Diana Elbourne |
| 22 |
[GO] |
2020―Nov―30 |
Family perspectives of COVID-19 research |
Shelley M. Vanderhout, Catherine S. Birken, Peter Wong, Sarah Kelleher, Shannon Weir, Jonathon L. Maguire |
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